Hi all, hope your wee and in good health 😄
Just wanted to ask and put it out there, if anyone knows of a phone number (uk) of anyone that I can speak to about lemtrada? I had my first lot of infusion end of Feb/beginning of March 2017. I am still recouping but am sooooo intoxicated, like I’ve had 2 bottles of wine! Some times it’s not so bad and can get on with things, other times it’s just all encompassing/ engulfing and can’t even think- let alone do anything- don’t know if this is a relapse? Side effects? I had the feeling of intoxication before treatment, but since treatment it’s much worse. Its unfortunate, I don’t have a very good MS nurse, not seeing consultant till August 2017 and just feel left to my own devices and ‘lost in space’.
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