I’m new to shift ms and just wanted to share my experience after completing my course of Lemtrada. As Lemtrada is the leukaemia chemotherapy drug, it was quite scary to think I was putting Chemotherapy into my body to destroy the T and B cells that are responsible for giving MS. After about 2 weeks from the first 5 day course I had a relapse. I had not had a relapse for years and found this drug counter productive. I spoke to my Neuro and said this drug that is supposed to reduce relapses by up to 80% but had clearly failed. He advised that I need to complete course in 1 year. Well 1 year later and I have completed the course and feel like I am relapsing again! I am struggling to get around again. I have tried Tecfidera and had a negative reaction. I’ve tried Tysabri and had negative reaction and now this chemo drug. As I look back over the 22 years with this condition, I believe I would have have better off not taking any of them and would probably be more mobile than I am now. However the only medicating product that I have found that gives me back a life and a 70% improvement in mobility for a few hours is Alcohol. I have 2 bottles of beer ever few weeks and the result is miraculous. I would be interested to know other people’s experiences with these dreadful drugs.
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