Hi all! I hope this year has treated you all better.
I have a slight problem- But I wanted your collective opinion.
I am Australian and currently living in Austria. I am currently on Gilenya for RRMS and I am stable however my fatigue is awful and I am constantly plagued with colds and flus #immunosuppressed. This makes my career choices rather difficult as I am training to be an opera singer- which is hard without being able to ever breathe through my face.
My current symptoms are balance issues and pain in my left side. Vision and memory problems, and of course pure exhaustion.
My neurologist in Australia (who knows me on a more personal level) has suggested and would prefer that I leave Gilenya and change to Lemtrada. It is fully covered by my insurances in Australia.
However, my neurologist in Austria is against it since the indication of highly active MS is for sure not fulfilled in my case. (He doesnt support the decision but will continue to treat me regardless)
That being said, I know for lemtrada to be an option in Austria you have to have highly active ms, and have failed some treatments previously.
I am leaning towards the lemtrada treatment as it feels like I am being given a chance to try get back to a near to normal life. (totally aware of the side effects) Im only 26 and moved to Europe to sing, not be bed ridden by life. I’m eligible in Australia but not in Austria.
So, what would you do??
How ever I feel like this is a case of an eligibilty/fairness/moral conundrum.
Any thoughts would be appreciated.
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