Before I go seriously into one, a big shout out to all the physio guys I’ve had the pleasure of meeting lately, thank you all.
They are the guys that have taken any real notice of me, not just the symptoms or the disease. Oh and my GP. Me as a person.
The good people above have both basically told me to put myself under the care of Kings in London as my local never out of special measures hospital in partnership with Kings are pretty much letting me down, and I should complain, they both work under it to a degree and that’s scaring me to be honest, the Neuro physio works in it!
I’ve been dx by letter since 20 December happy Xmas eh! Not had any correspondence with them since. Just a list of meds to take and MS nurse will sort the rest out, here’s some books I’ll see you in three months bye oh some appointments will come through for you soon. A month and a half later hadn’t heard a jot. Rang the nurse no answer no reply left messages nahda.
Stuck a letter of complaint in guess what a whole load of appointments come through but no reply to complaint yet, amazing tho eh?
I saw the Neuro Physio this morning for the first time, he’s basically told me my meds aren’t up to the job. My right leg and ankle are almost knackered due to my spastissasy my ankle and foot are starting to point in with little or no movement.
I was feeling pretty chuffed with myself at the beginning of the year thinking I’m putting a bit of weight back on and getting a bit more toned even got a 4 pack, I’m not that vain! 4 is fine . Only to be informed that it’s my whole body tightening up, that’s why I ache so much bummer !
So any who how do you go about jumping ship or do I take them head on?
I’m in the mood for a scrap but is it worth it? Que Bono?
Thanks for reading sorry for waffling on.
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