chloeautumnx 05/02/17
Last reply 1 year ago
It's always developing.

Hi, I hope you’re all well.

Before Christmas, I was admitted to the neuro ward of a hospital in Manchester with eye problems. I had bouncy, double and blurred vision which was accompanied my visual loss. I thought I was going blind. My vision was 6/60 which apparently isn’t very good at all!
I had iv steroids for 3 days and an MRI which showed no new lesions but a grey matter in the centre of my brain. My neurologist told me that the grey blob was responsible as it was pressing on nerves in my brain which control my eyes. She believes that this had manifested from a viral infection I had in October. The have said that this is ‘functional visual disturbance due to convergence spasm’.
Since this episode, my eyes are quite painful and are sensitive to bright lights and I struggle when driving at night. I had an eye test yesterday and they told me that if it becomes any worse, my driving is likely to be affected and this would devastate me.

I have been referred to neuropyschogy but I am unsure what to expect from this. Apparently they help with trying to ‘retrain’ pathways in the brain?

Just to note, I am on lemtrada and have finished both infusions now but immune system is still low so a common cold seems to linger longer.
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stumbler
1 year ago

Oh, @chloeautumnx , it’s one thing after another for you, isn’t it?

I haven’t much of a clue about Neuro-psychology. It could be a case of suck it and see what they can do to benefit you. You just don’t know till you’ve tried.

Just a thought with your eyes. If you are sensitive to bright lights then it might be worth exploring the possibilities of whether tinted glasses may help…..


tracyd
1 year ago

@chloeautumnx

Yikes – you’ve just described a lot of what what led up to my diagnosis the 3 days IV steroids did help to bring down the swelling that was pushing on my optic nerves but it took about 10 days before everything settled down again.

In the meantime I worked on my Blues Brothers tribute act xxxx


chloeautumnx
1 year ago

Thank you @stumbler and @tracyd for your replies. I seem to have developed a cold and sore throats which is unsurprising due to the low immune system and working with children. However, my eyes are bad again. Not as bad as they were when I was admitted but very sensitive to light, blurred and they keep watering like mad! What do you reckon I should do? Ride out the storm or call my nurse? If I did that I don’t know what I would say! X


stumbler
1 year ago

@chloeautumnx , it’s always wise to provide an update to your MS Nurse. They may have some suggestions………..


tracyd
1 year ago

yes let your nurse know.
I too have the plague right now my head is a thumping, my eyes are streaming and light is not my friend. Once I’m feeling up to it I will be extracting revenge on my husband for giving me his shitty illness ??


chloeautumnx
1 year ago

Thank you both, I have rang my nurse and probably sounded like a blubbering mess!
I really want to go in to work tomorrow but it’s looking like I’ll have to wear sunglasses and look like a baboon! Haha. Ah yes @tracyd, don’t let him get away with it! Ha ha x

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