Last reply 1 month ago
I’m not useless but still need help!

Hi guys. I’m newly diagnosed but I’m trying to get back to normal life which includes working part time studying full time and raising two kids with my partner. How do I get everyone in my life, from my partner to my coworkers, to understand that everything is harder now, more complicated. I don’t want to be coddled, I want to do everything I can for as long as I can but just because I “seem” ok doesn’t mean I am. To complicate it more my partner is (undiagnosed but everyone knows) what used to be called Aspergers. How do you explain it to people in your life to get that balance?

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


stumbler
1 month ago

@rocky , it’s very difficult trying to get those with little MS awareness to understand what you’re going through.

You might find the following useful :-

https://support.mstrust.org.uk/file/store-pdfs/Explaining-MS-to-others-WEB.pdf


grandma
1 month ago

@rocky , Stumbler has given you info that you could pass on but try for leaflets etc,. To physically give to work colleagues, family, neighbours, anyone you can think of, try your local ms society or national ones, people are more likely to read and re-read leaflets, or refer to them if they’re on their coffee table, good luck🥊👏🤞😜


vixen
1 month ago

Hello @rocky, goodness me, you do have a lot on your plate! Everything is a real middle at the moment, but I promise you, going from ore diagnosis to the time around being diagnosed is the rough test of all. You just need a sense of recovery and stability for now. Don’t pay too much heed to worrying about the future for now. You need to make sure that every day is as quality a day as possible. When things start to normalise for you, you can start making small plans.

So for now, accept every bit of help available to you. Are you near family? I don’t know hold old your kids are. But you need to rest as much as you can while you recover. I know how easy it is to want to prove that you can still do things, keep going etc. But challenging yourself can come later. Focus on the here and now, and taking this strange new life one day at a time. I wish you all the best, and hope you will keep tuning in to Shift for support and advice. X


rocky
1 month ago

Thanks @stumbler @grandma @vixen. It really is a tight rope isn’t it? But thank you for your kind words of wisdom.

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.