I’m a newbie to shift.ms. I stumbled across this site looking for some sort of similarities to my recent predicament.
Warning: it’s a long one, so please feel free move on if you get bored.
So some background: 27yo Audiologist. Diagnosed with chronic Hemiplegic Migraines. 2016. Average 2 migraines a week for the past 2 years. Always starting with Right sided weakness and slurred speech, pain and resolved in a 24-48hr window.
As of evening 3rd Jan – got home from work and started to (what I thought) migraine. Right sided weakness (arm & leg) , slurred speech. 72hrs later, no headache and no improvement.
Monday morning, see GP. GP was quite alarmed at time length and sent me straight to a/e.
After 10hrs of being poked, proded and waiting, the speech had returned to normal. A CT scan and a check with the stroke team reassuringly cleared of stroke.
Drs then agreed to follow me up and send me home.
Friday – still no change in weakness. Pins and needles are intense and all over (comes/goes).
Back at the hospital for a follow up but unable to get an mri so they send me home.
I am so extremely tired now. Putting in a load of washing is enough to finish me off. I also can barely stand long enough to shower.
Saturday. Left arm/hand start to feel weak as well. Partner insisted this had to be checked so on advisement by out of hours GP, I’m back in a/e.
Checked over. Nothing more they can do until this magical MRI so sent home.
Today. Another hospital follow up – this Dr suggests theses symptoms are ms. She still stresses that only neurology can diagnose this and so decided to start chasing up MRI appointment.
Everything is so stiff on my right side. If I sit or stay too long it is super hard to get moving. I have random burning sensation in my hand, foot and face (right sided)
I have neurology app at the end of the month.
My symptoms come and go throughout each but never truly feel ‘normal’.
It’s been almost 2 weeks and I feel a bit in limbo. Being of healthcare background I did check my symptoms(reputable sources, NHS ms trust etc) before today’s appointment and did see the links between them and an MS diagnosis, so I wasn’t super shocked it came up.
A lot of the a/e doctors felt this was stemming from a migraine, but say it is unusual. Migraines arent fully understood and from what I gather, neither is ms. I’ve never experienced this before and I have never experienced L sided symptoms. I do appreciate migraines can evolve over time but I feel like this is just different.
However from reading a few of these posts it seams that people have episodes of symptoms for ages, before the diagnosis. So who knows what I’m in for.
Disclosure: I am fully aware that I do not have a proper diagnosis. I understand that any help or comments that follow this are not a substitute for a neurology opinion and will not consider them as such.
I’m just sat in bed, unable to sleep because my body is on fire (pins and needles) and I have no f***ing clue what is going to happen to me.
I’m also not sure if anyone gets this, or if anyone can understand this “limbo” like period.
I’m also unsure what to do regarding work, as I currently don’t feel like I can drive with this unpredictable nature on my right side.
Tomorrow morning I have a telephone appointment with the GP. Hopefully they can help at least with the next few weeks whilst I wait for these future appointments.
Sorry for the long thread. I’m just really yelling into the void. Not quite if this is even allowed and I can disappear if I’m shouting to the wrong crowd.
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