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merfield
9 months ago

Hi @gates1989, I cut out dairy to help avoid sinus probs, also gluten as it makes me itch. They say ‘no sugar’ is good.People posting on here seem to think a healthy diet is v important. Me too. I’m on the 5/2 diet to see if that helps: it’s supposed to but I can’t remember exactly how, but my latest MRI about a month ago showed no inflammation in brain or spine! My weakness is dark chocolate which I tell myself is very healthy-but I’m trying to go easy on it. @vickivictoria suggests a diet she swears by and she hasn’t had a relapse for 10 years….maybe ask her. whatever you decide – Good Luck- and if it works….post it here😊


gates1989
9 months ago

@merfield thank you! My o my real trouble is the stiffness in my legs so I’m literally trying anything to see if I can eliminate that symptom! X


simone2
9 months ago

I follow the best bet diet no dairy cows or goats or sheep, I havent had any relapses since starting the diet over 5 years ago and feel much better on the diet, I also take lots of supplements including Magnesium for leg stuffness/spasms.


gates1989
9 months ago

Does manganesium help with stiffness then? X


potter
9 months ago

You need to start out with a low dose if you try magnesium, it is also used as a laxative. When I started taking Tecfidera I had to run to the bathroom a lot. My doctor had me give up magnesium and flaxseed oil, made a big difference. Potter


Anonymous
9 months ago

Hi @gates1989 I also did the Ashton Emryo Best Bet Diet, including supplements (google it and he explains about molecular mimickery) for 11 years and no relapses. It’s only recently my cognitive skills have gradually declined, but I’ve turned that around too with diet. I also do yoga, I use natural/no nasty products in the home and on me, I have regular massages, I rest when I need to and I avoid stress. To answer your magnesium question:
(Top 9 Health Benefits of Magnesium
Helps Increase Energy.
Calms Nerves & Anxiety.
Helps With Digestion by Relieving Constipation.
Relieves Muscle Aches and Spasms.
Regulates Levels of Calcium, Potassium and Sodium.
Important for Heart Health.
Prevents Migraine Headaches.
Helps Prevent Osteoporosis.)

But there are other things you can do to help yourself. You’re probably suffering from inflammation, so including plenty of vegetables, quality lean meat-red occasionally, fish, nuts and legumes (pulses/beans) and excluding processed food, refined sugar, caffeine and alcohol will definitely help. It really helps if you listen to you body especially with your food. It’s not a quick fix and I was determined to find out that I was okay on red wine and dark chocolate, as like @merfield, I kept saying to myself it’s good for me 😉 I now don’t eat either and it’s been easier than I thought to illuminate them. If I can do it anyone can.

You’ll do fine as you’re already trying to find the cause. Good luck.

Thanks @merfield x


gates1989
9 months ago

Thanks @vickivictoria, can I just go and buy magnesium tablets or do I need a prescription? Yes, it’s literally the only think I’m struggling with and I need to do everything I can to get rid! X


Anonymous
9 months ago

Starting off dairy free is a great idea. Yes you can buy magnesium and I would suggest a health food shop rather than a supermarket. Try and buy them with the least amount of fillers – the shop will be able to help. Firstly though, I would get a blood test done at your dr to see if you are in fact deficient in magnesium or anything else in fact.

I’d love to hear how you get on. X


zahra
9 months ago

Hi @gates1989 I was diagnosed last summer and after reading a number of different articles, immediately went off dairy and gluten. It’s not as hard as you would think! I also have baths in magnesium salts and let my body absorb it that way, rather than take tablets. If you do want to see what you are deficient/sufficient in though, I would recommend sending a hair sample to the Rapha Centre. if you can visit it would be better, but it’s in Scotland so not sure how far that is from you. They basically test your hair ( as it holds the most amount of DNA on your body) and are able to tell you what your body is lacking. If you visit them, they ask no questions and test your sample first, against hundreds of different minerals and vitamins and then tell you what symptoms you are having which is really amazing (and makes you instantly believe it)- but you can also send a hair sample in a speak to the Dr over the phone. When I visited she was able to tell me my left foot was having a sensory numbness and I had had trouble with my right eye. It’s pretty cool. The minerals are also inexpensive and all natural, so a win win. Hope this helps! (www.rapha.com)


zahra
9 months ago

Also watch this video! its pretty inspiring and explains in much better details what foods we all should be eating!!


avox
8 months ago

I cut out gluten and dairy about a month into my symptoms starting. My friend recommended it as she has had MS for several years now and as soon as the Neurologist told me he was 90% certain I had it and sent me for a LP, my friend gave me a lot of info on how she manages it and I’ve never felt better! I still have symptoms and get stiff ankles and the like but I’ve lost weight and feel so much better in myself for it.

Incidentally, I’ve accidentally eaten gluten a couple of times and it makes my hands tingle almost immediately (which makes me go back and check my food!) So there’s got to be something in it as far as I’m concerned!

It’s not so bad once you get used to the basics of what you can and can’t eat. The Deliciously Ella recipe books have worked wonders for me!

Also, buying supplements off eBay saves you a ton of money (I always but the Linden brand).


sylvanna
1 month ago

Hi @gates1989,

While it is great for your health (and the planet’s wellbeing!) that you are going dairy free I wouldn’t say it is a definitive cure for symptoms. I have been vegan for 23 years and in that time my RRMS has definitely worsened – my legs seem to be the main focus of my problems at the moment. It might be that my dairy free and plant rich diet has helped keep lesion progression under control – my MS is certainly towards the milder end of the spectrum – but I still get some symptoms most days. More research needs to be done.

If you have typically eaten a lot of dairy in the past then you need to think about adding the calcium back into your diet now you are dairy free. You don’t want to expose yourself to a greater risk of osteoporosis on top of everything else. Lots of calcium is available from leafy greens and both tofu and seaweeds are excellent alternative sources. Almonds are pretty good too and I’ve heard a small handful of unsalted nuts every day is really good for your health in general.

Best of luck and let us all know how you get on.


flotsy
1 month ago

I am dairy free and also use Amazing Oils Pain Free magnesium spray. Works well for me.😊


londonlad
1 month ago

Hi @gates1989,

I’m less than a year diagnosised, and I went about doing the research as many of us have.
I found the various topics of diets etc.

When I asked my neuro (gavin Gionavonni- pretty renowned in the field.) he recommend the Mediterranean diet. No mention of cutting out any particular food type.

Anyway, I digress. I found the overcoming ms book. And I took away from that, thay diary might, impact the ms. So even if it’s a little bit, I feel, why risk it.
Anyway, I use to get a bad stomach when drinking milk in coffees and since switching to soya, never get that.

I’d say, ms aside. There’s plenty of suggestions that diary is not good for the general population. I think the whole fear of lack of calcium, was scaremonger and used to promote the industry.
You probably know that we are suggested to have vitamin d daily, while there is a suggestion that this may be helping our ms and those without it, from getting ms. Another major reason is for us to absorb calcium through our diets, which as someone mentioned, should consist of healthy greens etc. It’s why they suggest not taking calcium supplements with a high vitamin d doseage.

I don’t know if it’s directly helping my ms. But I know it’s helped me live a healthier lifestyle, and overall that helps me.

Take care.


londonlad
1 month ago

Oh and I take magnesium daily. I started and seemed to notice improvements with weird sensations I was getting.
I ran out, and I started to have hand spasms, which seem to be improving again, since I’ve restarted the magnesiump tablets


stephz
1 month ago

Hi @gates1989 I changed my diet pretty much straight after my diagnosis and went dairy free except lightes Philadelphia & Skyr jogurt to get calcium (no need to supplement if you take high dose vitamin D – since tat helps your body extract more calcium from food) I didn’t cut out gluten but I increased my garin variety so rather than only having wheat I now have rye, spelt, couscous, quinoa, oats to mix it up. I did cut our processed sugars – this made a big difference to my fatigue levels and replaced with fruit, nuts, raisins and unprocessed suagrs from honey, coconut sugar etc – still not too much though. I don’t eat meat (haven’t for 20yesr) and I watch how much fish I eat. I also try and only eat 1 egg a week. I try and make my melas fresh and from scratch (where possible)

For dairy replacements- almond and coconut milk work well – cocnut milk in coffee is really nice. I try and not have soy products.

meal planning might help at the start – I made a a MS food board on Pinterest to make sure I don’t fall back into old eating habits

Also if you fancy somethign- have it…I asked my boyfreind to by me some sweets since I really fancied them…


vicster
1 month ago

Hi gates1989!

I went dairy-free back in 2012 and only drink almond milk. It totally helped my symptoms.


seanachai
1 month ago

Hi @gates1989

Most people today are low in magnesium as with other key vitamins e.g. Vitamin D3. Also magnesium is important to help Vitamin D3 function adequately for specific processes; I assume you are on a custom D3 dosage which is strongly recommended for MS.

If you are going to take all above which I personally would recommend and go non dairy, pay attention to your calcium and getting the balance right, I would recommend speaking a specialist MS nutritionist/dietician, pm me I can recommend one.

I can’t comment too much on the non-dairy as only started on that route, except to say it is a bit of pain in the ass being used to a normal dairy diet 🙂 … small sacrifice in the scheme of things…..


edmontonalberta
1 month ago

@gates1989

My wife is a health Goddess (me, far from it…) She cured her Lupus without damaging drugs her Specialist gave her… Jos accepted the prescriptions then threw them in the garbage when she got home – it took her Specialist 3 years to figure this out.

I drink, I smoke as I have for more than 40 years. Everything else – Jos is in charge. Especially my diet. Red meat – gone. Processed meat – gone. Eggs – only once every two weeks to give me a taste of the past.. 😉

Vitamin D & Omega 3-6-9 daily. She takes magnesium daily – I suffer through the cramps. She swears by coconut milk but I don’t like the flavor. But I trust her, so milk is completely gone.

For the record, my walking has improved. I may never play sports again, but I am okay with that since a wheelchair is not in my immediate future. Good luck…


edmontonalberta
1 month ago

Opps – just checked the fridge; meant almond milk NOT coconut milk. Other than that, my previous post is valid… 😉


edmontonalberta
1 month ago

@gates1989

Since I was curious – I read your blog. You are an absolutely impressive writer; your thoughts over the past few years are exactly what many MSer’s are going through. Thank you!

On a side note, your husband is a Saint. You chose well…


noelie
1 month ago

@gates1989 having a good diet definitely helps wellbeing, i’m off dairy too: almond milk and soya yoghurt (lucky me: i never liked cheese). Low sugar, low gluten and low saturated fat, no meat. My weakness is chocolate.

As regards to stiffness in the leg, I don’t believe it will go away with diet alone. You need massages, stretches, and strengthening exercises. Look at the spasticity series of The MS Gym on youtube, it shows you how to do it yourself if you can’t see a physio.

Good luck x

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