I have a lot of the symptoms that are on the MS NHS page. I’ve had extreme fatigue (which made me stop going to school in September 2017), I have leg pain, pins and needles in my side, difficulty swallowing, weak legs (I’m thinking about getting a wheelchair) and cognitive dysfunction (I have a few more symptoms but I think you get the gist).
In September I was diagnosed with an iron and vitamin d deficiency (gp said it was because I had a viral infection and it pulled everything down). I was messed about between two gps and I have stuck with the one who said that I have a fatigue based illness (the other said that it was just anxiety making me feel like this).
My gp referred me to a pediatrician and I managed to get a cancelled appointment instead of waiting 3 months. However, this is where it all goes downhill. The pediatrician told me that there was nothing wrong with me and has referred to counselling (I haven’t heard anything from the counselling team who I don’t need or the pediatrician as he discharged me).
I have been left completely on my own and I’m trying to fight for a diagnosis. My gp said that he thinks that I have chronic fatigue syndrome so I clung to that but my symptoms didn’t add up and upon a lot of research (what else have I got to do!) I strongly believe that it is MS.
My parents are trying to get me referred to a neurologist and because of my awful experience with the pediatrician I haven’t set foot in a doctors since.
I have some questions for everyone with MS.
How long does the neurologist first appointment usually take?
How did you get diagnosed?
What questions would they ask?
And if you use a wheelchair then how do you request a wheelchair (I’m scared that my gp will think I’m being over dramatic like my parents do)?
I’m so sorry that this was such a long post so thank you for reading it 🙂
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