I’m new here and have been looking for a support group for a long time. I have MS, have been diagnose for a little over 4 years. My diagnostic was done in the weirdest way possible, and to make a very long story short, it was not done in the most professional matter at all. Since I’ve had to switch Neurologist because I had absolutely no support from the 1st one and the only thing he was doing was pushing me to take pain pills and tell me I probably had other diseases like fibromialgia and other unexplained diseases, it was why I felt that way and told me to stop complaining because my MRI’s where not showing a lot of lesion, but I still have secondary progressive MS?!?!?
So I took my pain, my fatigue, my pain meds and Tysabri and found a new Neuro with the help of my family doctor and starting new. Good thing I had my family doctor, because if he had not been there, wow!!! Not sure what would of happened. Now me and the family doc manage to get the lower back and left leg kind of back to normal and the pain was very manageable, but since Dec. 28/29, it’s like all my pain meds have stop working and all the pain in my lower back have come back and the pain as switch to my right side and the pain is excruciating. I can’t even sleep it hurts so much. My right side as never been affected before. Every time I relapsed, it was always on the left side, hand, arm and leg, but never right. Now, the new Neuro wants me to up my intake of Lyrica (1 more pill at night for 1 week and then 1 more pill in the am for another week) and then I’ll see her… I’m just so annoyed, annoyed that they/we can never be sure what it is, is it MS? Is it something else? Why always a doubt? It’s like you go to a walk-in clinic because you have a really bad cold and they listen and are all nice, but when you tell them you have MS it’s like you just told them you have the worse contagious disease in the world.
I’m usually a very positive person and I never write stuff like this, but today kind of drew the line. I don’t like to take more pain killers to see if it’s MS or not. I feel like dealing with MS everyday is hard enough that a we should get a better support system out of our doctors and nurses and if it’s not MS, what is it? Will me taking more pain meds make it worse? Or if I wait, will I make my maybe non related to MS issue worse?
Anyone feels like sometimes we are so out of options it’s not even funny??
Thank you for letting me vent 😉
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