Last reply 3 weeks ago
How long before Mavenclad taked affect

Hi to all with knowledge and/or experience with Mavenclad.

Can anyone please tell me when I should, see, feel the affects of MC taking affect.

I’ve had to take time off work as now being 10 weeks without Tysabri and am wondering when I should be back to the state I was in before coming off Ty.

Thank you,

dvtrv

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stumbler
5 months ago

@dvtrv , there’s this recent post on the subject :-

https://shift.ms/forums/topic/cladribine-side-effects-2

Perhaps @chezy17 can add some more detail of her experience. 🙂


chezy17
5 months ago

Hi.

I don’t know how long it will be before I know if it’s working, I guess if I relapse, then I would know. They say that most who take it don’t relapse for a few years, but I guess it’s a case of waiting.
The only side affect from taking it was sickness, but eating helped that.


dvtrv
5 months ago

@chezy17

Thanks 4 ur msg.

Tablets arrive Tuesday.

I’ll update accordingly


sam10
5 months ago

@dvtrv
Hard question. I was on copaxone 2016. I had 3 relapses (mild). I started Mavenclad may 2017. So far so good.


chezy17
5 months ago

I was on copaxone, switched to plegridy after site reactions and had a relapse plus the flu…I think cladribine will bw alot better. X


dvtrv
5 months ago

I received my tablets and will be taking Mavenclad as of this afternoon.

Does anyone by chance know if it is or is not recommended to drink alcohol when taking Mavenclad?


stumbler
5 months ago

@dvtrv , standard advice is :-

“In general, drinking alcoholic beverages should be kept to a minimum or avoided completely. You should discuss this with your doctor.”

So, moderation and take care.


dvtrv
5 months ago

@stumbler

Cheers pal, I haven’t been able to handle my Ale for years now so moderation is always the case, when I actually get to go out 😢
🎻


chezy17
5 months ago

I didn’t drink with mine, I waited till I finished the course of tablets but that was because it made me feel sick. I do like my alcohol, like to chill with a glass of red in the evening.

One thing I’ve noticed is that my immune system is on the spritz, I’ve caught a sick bug, a cold and now an ear infection in the space of 3 weeks. I know it does drop your immune system a little, although I work in a school so surrounded by lots of germs 😂😂!


mmhhpp
5 months ago

@dvtrv
I started cladribine injection in may and it was about September when ms slowed down. I am spms still some activity. I was really going down rapidly 2 years before . cladribine has definitely slowed it down .


dvtrv
5 months ago

@chezy17

Thank you good to know.

I’m not feeling nauseous at all but probably best I do as u said n hold off before having a drink.


dvtrv
5 months ago

Hi @momoftwo,

Have got any further with regards Mavenclad?

I started on Tuesday after being on Tysabri for 7 years.

Took two tabs Tuesday, one yesterday and 1 today.

Too soon to report on effectiveness but I can say not side affects visible or noticeable as of yet.

I’ll be updating as have already on here


dvtrv
5 months ago

Have you…..


dvtrv
5 months ago

Update for those interested;

First week on Mavenclad and all’s well.

The end.

I start again right at the start of the New Year.

Stay tuned people.


dvtrv
1 month ago

Hello,

Update to my journey from Tysabri to Mavenclad.

2 dose of 6 tablets w/c 01/01/2019

Clearly I am no longer on Tysabri.
I tire more easily, I wake as though I’ve already done too much.

I am due to see one of my MS nurses start of April.

My main question(s) are deffo gonna be;

Is this it?
Is this what I’m to expect from this new drug I’m on &

Will it get better and will it improve over time, after next 2 courses of tablets end this/next year?

I’m knackered and it’s not nice.

I was doing so well on Tysabri, shame I had to come off it.

Started Ty 01/03/2011 and became positive for the JC virus, hence why had to 😢 come off Ty.

I miss it and found it a little sad having to say goodbye.

Crazy hey.

Ah well, I’m well aware many others are much worse off than me.

Since diagnosis January 2011, my wife and I had a beautiful baby boy who’s 😩 now 2.

We’re having a girl on the 8th April via C Section, due to whatever reasons.

I was tired before having a son and now another pleasure due on the scene.

Good luck to everyone in their journey from and to wherever it’s heading.

I feel quite emotional now but know most of you will have a slight better idea what I’m going through.

Thank goodness I’m a slightly positive person.

Dvtrv over and out ✌️


hollylb10
3 weeks ago

How are you getting on now as this is a drug I’m interested in.

I hope the tiredness has gone got you!


wendyhills
3 weeks ago

I spoke to the adveva nurse and asked that same question yes you can drink alcohol but sensibly I started year one in dec 18 and it’s going well. Even though they say it not necessary to eat with them I did and did not experience any sickness as others have. I’m feeling ok at the moment still have fatigue a lot but feel settled if you no what I mean I kept having little sensory issues but they have stopped since taking mavenclad due my mri in June to see if everything has settled down fingers crossed. Good luck to you drink plenty of water x


dvtrv
3 weeks ago

hollylb10

I’m doing good thanks.

Think I was expecting something EPIC to happen but it turns out I will be as I am.
“They” are interested in there being no change.

Like I say I get tired more easily, but good thanks.

Oh yeah, My wife and I had a beautiful baby girl Monday 8th April.


stumbler
3 weeks ago

Congratulations to you both, @dvtrv .


dvtrv
3 weeks ago

@stumbler

Aah there you are, I did wonder.

Thanks chief


highlander
3 weeks ago

@dvtrv
Congratulations to you both!
Word of warning though wait till she turns 20 that’s when it gets interesting!
They know about everything! Including boys!😃
Enjoy….


dvtrv
3 weeks ago

@highlander (?pal?) 🤔

I’ll be 63 when she’s 20, doesn’t bear thinking about.

I’ll be more concerned about the go faster stripes on my wheelchair, I’m not in a wheelchair btw


highlander
3 weeks ago

@dvtrv
My daughter who’s 20 bought me go faster stripes when I turned 50 in March.
For my buggy and wheel chair.
I was so impressed…..

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