highheeledfagin 27/05/17
Last reply 11 months ago
How did you approach LEMTRADA?

Hi, People. I started Rd 1of Lemtrada (alemtuzemab) about 3 weeks ago and have been meaning to post something since then. When I get myself together and start putting my Lemtrada journal up on Tumblr, I’ll post the link.

I think that I was reasonably well prepared for this whole thing, but am interested to know how other people approached this: what were your priorities? What did your preparation look like? How concerned/restrictive were you with your diet? And what tips/tricks have you learned that you think might help somebody else who opts for this treatment?

I’m not yet decided on whether or not this will turn into an official round of MShacks, but it definitely could.

xdee

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zenkai
12 months ago

Hey highheeledfagin I’m in the same boat as you my first treatment was 2 weeks ago, my diet I mainly eat freshly cooked while it’s still hot to kill all of the listeria, I don’t eat deli meat, I avoid salad unless it’s properly cleaned and I only have pasterised milk/cheese, I told my nurologist and they’re happy with it.
P.S. I still have take out lol 😁


highheeledfagin
12 months ago

I cut out the take-aways: I’m cheap so you can almost guarantee that the food I buy has probably been sitting out at some point, or reheated.


zenkai
11 months ago

I’m just trying to stick as close to a pregnant woman’s diet as I can, cause it stays clear of listeria. I think that’s good enough 😕


tracyd
11 months ago

@highheeledfagin

My approach to Lemtrada can only be described as ‘going to war’ It’s my immune system and it will obey me.

There’s a lot of stuff on my blog about what that entailed, oxygen treatments, vitamins and minerals, fresh air, moderate excercise (dog walking) and finally having a legitimate reason to avoid lettuce ….

I’m a bit of a foodie so I prepare everything from scratch at home, I’m careful about ingredients using things from my local farm shop not supermarkets wherever possible (pre packaged is usually where you haear the news reports of ‘nasties’ being found)

I carried on as normal though with a healthy dose of OCD about hygiene, I got through gallons of anti bac gel and someone pointed out to me about 6 months post round 2 I’d developed this habbit of never actually touching anything …… I always wear a pretty scarf round my neck and had just started using it as a barrier between me and doors / escalator rails / menu’s pretty much anything that ‘others’ might have touched…… (Yes I’m a bit strange)

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