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grandma
2 months ago

Hi Julie, I’m just down the road in Stoke, 62 yrs old, have had the beast for 26 years and the Neuros are still deciding if my rrms has become spms but the jury is still out!

Like you I have finally ‘gone off ‘ my legs but can’t complain as I was told this would happen after 10-15 yrs, and it took 23🥊

Went to a great ms get together in Seffield a couple of weeks ago, a lady at the meet up said she would host the next in about another month, and she lives in Chesterfield, so it shouldn’t be too far if you feel like joining us, so keep your eye out on Shift for a day and time.😜🤙


stumbler
2 months ago

Hi @julie_augustus and welcome.

Just like the rest of us, you just have to keep fighting. 😉


julie_augustus
2 months ago

Hi grandma, I know what you’re saying I’ve had numerous relapses and lost some vision, lots of sensation in lots of places and now they just say progression, turning the music up and singing along helps. Chesterfield is at least 2hrs from me, so not close but I will keep an eye out x

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