Hi, I have something wrong with me and nearly 1 year later, I’m still not much further forward with a diagnosis :(. All I do know is the doctor also thinks something is wrong (but no idea what) and that it’s definitely not arthritis (according to a rheumatologist).
For around 25-30 year’s I’ve had issue’s with my knee’s and heel’s… From constant tingling to aching but, I just put it down to being a hard day or constantly on my feet. Even as a child I had trouble with my knee’s, unable to sleep due to pains in or around my knees… It was always put down to growing pains. Having said that, I never found anything difficult, no problems walking or running etc. For a similar period of time I’ve also had what I called dry eye’s, either eye but rarely both together. I’ve used eye washes and bathed my eye’s but nothing seemed to help…. I did mention my eye’s to my doctor because my father suffers from the same thing, although his eye’s water all the time. The doctor immediately dismissed this with, “dry eye’s is a symptom of arthritis and you don’t have arthritis “. I’ve also got problems with my hearing, lot’s of noises, tinging, clanging and static.
I have always been active, a quick walker, bike riding, fishing and metal detecting right up until early July 2017 when after a day out I noticed my right elbow had become very stiff, I was unable to bend to wash my hair or face…. My left knee looked swollen but did not feel any pain at that point. By the following day Aches and pains started and soon after I found I couldn’t put my weight on either leg. I left it a week just to see if it eased or went by itself before making an appointment with the doctor. Before anyone jumps to any conclusions… In the last 25 year’s, I’ve probably been to the doctors 2 or 3 times. I’m what some would call a typical bloke, I’ve never bothered the doctor’s unless my wife has nagged me to breaking point… And it was my wife this time too.
It was in the second week of struggling to walk and having extremely stiff leg’s to the point of them feeling very numb, burning and throbbing like crazy which would last most of the day from getting out of bed that I rang for an appointment, the doctor examined me and said he thought it was arthritis but not sure what type. He put me on Naproxen and Codeine and made an appointment for blood tests for the following week. Blood test results said low white blood cell count and prescribed folic acid, arthritis negative. Another week and I was struggling so much I called for another appointment, the pain was so bad I cried every day… Not being able to walk even around the house was frightening. The second doctor examined me and said he thought my knee caps protruded on movement but couldn’t explain why, even said it could just be one of those things and agreed with a rheumatology appointment. The appointment came and was for October .
The pains and struggling to walk continued and felt like it was spreading…. My elbows, wrists, fingers and thumbs all started aching with shooting pains throughout my limbs. Again I called for another appointment, this was with a trainee doctor who sent me to x-ray dept for x-rays on my knees, he also made an appointment with physio therapy. X-rays came back “no action”. During all this I started getting a couple of dizzy spells which was scary and noticed a slight head twitch which got very much worse, affecting my left leg and head/neck… While sitting my leg would kick out and slap back down to them floor, sometimes once or twice sometime multiple times but throughout the day, my head flicks to the left from my kneck…. These Could be gentle or quite violent.
Still a month or more to my rheumatology appointment I then came out in a rash, itchy and burning raised red marks. I couldn’t sleep and called 111 and was made an appointment at 5am in hospital with a doctor who prescribed antihistamines, she said it wasn’t because of my illness or the medication? The following day it was worse and was told to go back to hospital were I was prescribed steroids (Prednisolone)… The rash went by the next day and although I felt terrible I was able to start walking around very soon after.
Rheumatology appointment came and I was examined and another appointment for an mri was made in December…. The results of which were negative. He said he would communicate with my doctor and suggest a neurology appointment and blamed Naproxen for the rash. The neurology appointment was made with another long wait (may 15th 2018). I’m getting about much better compared to before but still struggling. Physio and walking sticks really help, thanks to the trainee doctor. But Aches, pains and tingling all over. I get what feels like a mild electric current down my buttocks, legs and occasionally back and head. Sometimes my eye sight is like looking through water and can last for 10mins to an hour ish.
So, I have neurology Tuesday next week and an ent surgeons appointment for hearing on Thursday next week….
Sorry for the long post, I’m not after sympathy or presuming I’m the only one suffering… I’m just frustrated. The doctor’s (and I’ve seen maybe 10) and my current doctor who wanted to take this up (but has never examined me in about 8 appointments so far) don’t seem to know what is happening. As I’ve already mentioned, I’ve never bothered previously when not well, I’m not a hypochondriac… Just confused and struggling, I’m loosing my balance and have fallen in the bath 3 times and on the stairs once…. And currently having a bad time of it.
Thanks for taking the time to read, I’d appreciate any help.
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