Hello, I have recently discovered this site and am finding it very helpful.
I have had RRMS for about 17yrs and am currently taking Tysabri. I’m having a dilemma as I’m now at the 24th month mark and my risk profile is high because I’m JV positive with high titre and previous MRIs show a large number of lesions. My neurologist is happy for me to continue with more frequent monitoring (MRIs every 4mths). My dilemma is that for me the risk of PML (about 1 in 100) is very high and yet on the Tysabri I feel very well, have had no relapses over 2 years and my fatigue is much less. My other options are Lemtrada or Tecifedera. I have two children (aged 7 and 5), I’m currently a stay at home mum and I’m finding it virtually impossible to come to a decision where there are so many unknowns… Has anyone else faced a similar situation? Best wishes, Becca
Browse categories and add by clicking on them
You can remove current categories below by clicking the ‘x’.