Hi there! My first time posting on this site! Never knew it exsisted and still can’t figure out how to respond but anyways, I’ve been dealing with this disease now since my son was born almost 19 years. No fun at all. I hate everything about it! Mostly my son, he needs a “normal “ mom and he doesn’t have one. I’m walking, talking, and fighting all the symptoms everyday! Always something. I’ve had to deal with catheters this year as to the bladder just stopped! Fun stuff! I take copaxone for years now and I forget to take it but all these new drugs out??? I’m afraid actually. I think looking back when reading…. it’s a progressive disease! That it is. It works on you and I hate every minute of it. My only question is why? Why do we have to suffer?? I look forward to checking you all out😁
Browse categories and add by clicking on them
You can remove current categories below by clicking the ‘x’.