mmhhpp 23/01/17
Last reply 1 year ago
Help lymphopenia fingolimod

Hi all, i am taking fingolimod (Gilenya) every othe day for at least nearly 4 years now and lymphocytes are normally just above 0.2. Lately they are becoming lower and lower and i was wondering if any of you also have this problem and how you resolved it.

I have read in the literature some people take fingolimod every 3 days.

Is that the case in any of you?…..

I am a little bit concerned because i don’t want the hospital withdrawing the medication…..

Please reply….

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sonia1984
1 year ago

If you are below the 0.2 threshold then PML becomes a concern. I would definately be following up with a healthcare professional. Are you actively having your blood reviewed every 3 months?


mmhhpp
1 year ago

Yes sonia regular blood tests even every two weeks!
Thanks for reply

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