mmhhpp 24/04/18
Last reply 2 months ago
Gylenya lymphocytes not coming back

Dear all,

I am absolutely desperate I stopped Gilenya in December and my lymphocites won’t reach 1 which is the value I need to start cladribine I am still 0.68 and values go up and down that number. Has anybody suffered from lymphocytes not returning back to normal ?

I am desperate because relapses are coming back because of stopping medication. I’ve got bad eyes bad hearing bad dizziness all this is new so I am absolutely desperate

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2 months ago

@mmhhpp , what do the medical experts say about this situation?

There are ways to help increase the lymphocytes, Gamma Globulin or Bone Marrow Transplant. Although, this is just what I’ve read………

2 months ago

It seems that it can take over a year for your lymphocytes to return to close to normal.

I’d discuss with your MS nurse or neurologist.

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