Last reply 5 months ago
Gylenya lymphocytes not coming back

Dear all,

I am absolutely desperate I stopped Gilenya in December and my lymphocites won’t reach 1 which is the value I need to start cladribine I am still 0.68 and values go up and down that number. Has anybody suffered from lymphocytes not returning back to normal ?

I am desperate because relapses are coming back because of stopping medication. I’ve got bad eyes bad hearing bad dizziness all this is new so I am absolutely desperate

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


stumbler
5 months ago

@mmhhpp , what do the medical experts say about this situation?

There are ways to help increase the lymphocytes, Gamma Globulin or Bone Marrow Transplant. Although, this is just what I’ve read………


sciencegeek
5 months ago

http://onlinelibrary.ectrims-congress.eu/ectrims/2017/ACTRIMS-ECTRIMS2017/199645/sara.nagy.lymphocyte.recovery.in.real.life.clinical.practice.after.html

It seems that it can take over a year for your lymphocytes to return to close to normal.

I’d discuss with your MS nurse or neurologist.

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.