I saw my neurologist yesterdayand lets just say it was a frustrating experience, I won’t go into the details here, I’ve already written a big blog post ranting about it all, but one of the things that came out when I was speaking to the nurse after my appointment (the Dr didn’t even notice) was that my last blood test from a couple months ago showed my lymphocyte count was dangerously low. So low that they wanted me to stop taking the Gilenya (at least until it raises back up). Good thing I met with the nurse, or else who knows how long it would’ve taken anyone to notice my results!
Anyways, has this happened to anyone else? And if so, did you start back on Gilenya again after the levels evened out? I met with the nurse initially to discuss other med options, and I’ve been offered tecfidera or Aubagio if I choose to change… Just a bit confused at the moment! And a little scared to not be taking anything for the first time in 2 years…
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