Last reply 1 month ago
Gilenya Help in Germany

Hello, My name is Kim 25 years old from Iran. I am an international student and I live in Wismar, Germany since last month. I have MS since Sep 2017. I use Fingolimod ( Gilenya ) 0.5 daily since last January. In my 1st attack, my left eye became blurry and after using some Corticosteroids it became ok.
I am a member of TK insurance but I still couldn’t find an MS specialist in Wismar and I don’t know if they will cover the price of my pills or not and I am so nervous for it. I have the pills just for a few days. Also, based on my blood tests ( while using Fingolimod) the number of my W.B.C- R.B.C- Hb- plat Aand Hct have decreased since last year and now based on the last test on 30.7.2018 :
W.B.C = 3800
R.B.C = 4.57
Hb = 13.4
Hct = 38.9
plat = 201000
Should I change my medicine?
I have another question about alcohol, Is it ok for me to drink 0.5L beer (2.5-5% alcohol) once a week? how about red wine? which kind of drink is not proper for me? I do not smoke at all and I walk so much and I dance and do some Yoga practices in the week.
I appreciate your help in advance.

Best Regards,
Kim

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stumbler
1 month ago

@kimia_asgari , firstly, I’ve split your post and put it into it’s own topic. I hope the title is OK.

Anyway, I’m in the UK, so can’t help with your insurance question. Sorry.

But, Gilenya is an immuno-suppressant so I would expect your bloods to reflect this.

And, I can’t see any reason to abstain from alcohol. Your intake is very moderate.


sam10
1 month ago

Hi kima,
In terms of your blood cells you have to take care of yourself specifically in cold seasons, wearing mask, flu shots…. I don’t drink but I think one beer in a week should be ok if you like to drink.
By the way, which one is correct Kimia or Kimya?

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