I was just wondering whether I should be more pushy with my doc regarding MRI scans and wanted to see your thoughts. I’ve had one MRI scan when I was diagnosed in Jan 2013. I was on a trial later that year and had monthly scans over a 6 month period which they shared with my Neuro as it was based out of the same hospital. Since the trial finished, I haven’t been offered a scan and asked the neuro at my last appointment in March 2015 when my next one would be and he said probably not for another 6 months after I’ve had some time on Tecfidera (I am still waiting to be put on Tecfidera!).
It all seems really slow. I have lesions on my brain and spinal cord. My trial doctor was brilliant and talked me through the scans and my black holes.. but it will be nearly 2 and half years since my first MRI on the NHS by the time I get my next one. Just wondering if I need to be more insistent and being too passive here or do I need to manage my expectations around this? 🙂
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