Hey everyone, so here’s my story. I’m 38 was diagnosed in 2017. I think I always had symptoms but things didn’t start going wrong till 2013. My mom suddenly passed away from cancer, then in 2015 my wife was diagnosed with brain cancer. My motto was always that I wasn’t saving anything for the return trip, to do everything I could for her. I started having real pain in my knees and started physical therapy, it didn’t help and the therapist send me to a neurologist. A MRI later and I was diagnosed. My wife passed in September of 2017 and I have been going downhill since. Lots of fatigue, leg issues and now I’m just trying to keep it together. I went on a road trip last week from Jersey to Idaho and blacked out while driving, crashing into some road signs. The doctor but me on ocrevus infusions, I’m on my 3rd now and I don’t think it’s doing anything, I feel myself getting worse. I consider myself a caregiver and I don’t like getting help from anyone, just don’t know how to accept it. I have a relationship for a few months with a great woman but put an end to it because in my head I was getting worse and didn’t want someone else to be put though the same thing of watching someone get progressively worse. So here I am somewhat lost, wanting to talk to people but not wanting to let the cat out of the bag except to my inner circle.
This site is great, already feels nice to tell my story.
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