Last reply 1 week ago
First appointment ugh

Had the first appointment with the neurologist today and was not overly impressed by the bedside manner.

I asked him how many lesions and he said ‘why do you want to know that’ then told me it would be better for me to know if its low medium or high and i said ok which one.. he said low to medium – i have no idea what this means.

Asking about my eyesight – he just said, maybe maybe not, the left nerve inflammation was big so its still a waiting game – which i knew but thought he might have thrown a bit more hope my way.

I take more than 2000 vit d which they recommend, I don’t think they were happy about that. Diagnosed RRMS and then they said we will take more bloods to make sure.

Another MRI in 6 weeks or so. Came out feeling worse than when I went in.

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grandma
1 week ago

Did me not say anything about your assignment to a ms nurse? I did tell you that he was more interested in writing his next great tome for the Lancet! At least you’ve got an MRI appointment in less than 6 mths so you’re doing very well. Sit back, enjoy Christmas and the new year, face your MRI in mid January, and with any luck it will be you newly appointed ms nurse who tells you the result. You are unlikely to see the great man himself again but no great loss there as far as I’m concerned! Good Luck, you know where I am if you want any help.😇😖😍


mtvesuvio
1 week ago

They did say he would see me again with Clare in the new year to discuss treatment. I’ve got to wait for a referral to the newly diagnosed clinic for a nurse.


stumbler
1 week ago

@mtvesuvio , to be honest, the number and type of lesions is immaterial and fairly meaningless in the great scheme of things. You still have something wrong which needs diagnosing and treating.

Also, given the total unpredictability of MS, he cannot suggest what’s going to happen tomorrow for you……


grandma
1 week ago

If it’s Clare you’ll be ok, one of the team for years, knows what she’s talking about and is very approachable.😍


mtvesuvio
1 week ago

Thanks @grandma. It’s so helpful to speak to someone who knows the team x

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