My health is stable at the moment and presently I am happy with my MS team. I worry though that should MS raise its ugly head I may not be best placed to get the treatment I would want. I’m considering asking to be referred elsewhere and some hundred miles away where I believe I’d have the best chance.
Has anyone else done this? Am I able to request this? Despite the commissioning paper its such a lottery. Finding a proactive neuro is like finding a needle in a haystack. We could almost do with yellow pages type advertising of MS services which publish individual neuro / Trust value statements!
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