This is my first time posting and needing some advice/information or just to vent I guess. I was diagnosed back in June of this year but my first serious attack happened in January 2017 and since then I haven’t felt good at all. I had maybe 10 good days where I felt normal. I’m always in pain, fatigue stays but just changes in intensity plus all the symptoms (pins and needles, burning, numbness, brain fog) come and go but most days they stay. I just feel like crap🤨 and it really gets to me. I have 2 small kids (5,4) so it’s hard to rest but school is starting soon so I’ll have a break.
I guess I’m wondering is this how I’m going to feel forever or is it gonna get better or do I learn to live it and how do I manage this. Like I said I just feel like crap all the time, might have a good day or two or a few hours and then that’s it. I’m desperate not to feel this way or find ways to cope with this?!
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