How the hell do you explain MS. Geting diagnosed will go down as one of the worst days of my life, a relief to eventually know what was wrong, but then the shock set in and its taken me 8 months to get my head around things, or I thought I had, but, after visiting MS nnurse, I always feel she belittles my feelings, Shes really nice and informative, but, i feel unless you are in a really bad way, then get on with it. Yes, I am doing well, I am looking well, no I am not in a relapse,(I was unsure as read so much and told so much I am totally confused). I can get about, i wobble alot and fall against walls, hold on to things, wet myself, (sometimes), can’t go far on my own, need hubbys arm to link as after half hour of walking, and i really try to put oomph into my step, because I can, but then before I know it, my legs are knackered, I have to hang on to the arm of my husband. I climbed a hill the year before diagnosis, it was something I had always wanted to do, and I am gutted that I cant ever see me doing that again, or if I got up I would most certainly fall coming down again. One minute as high as a kite, then down in the doldrums, and todays a low day.I have no job and have had it said to me, oh so and so has MS, shes in a wheelchair and she still works…yeh, she had her career when was diagnosed, they will look after their employees, they have to keep her on and thats fab that she has the ability and the confidence to carry on, I have always had a part time job, sales assistant, then went on to being a support worker. I did that job for 5 months,but things were going wrong, I cannot do that job anymore.I can’t be responsible for looking after 3 others when my legs are collapsing underneath me. I have applied for a few jobs, with no luck, but in reality, its not so easy. Argh, I hate these days…
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