Hello MS community,
I’ve had my first relapse since diagnosis last September and was generally on the symptom Merry-Go-Around (numbness, tingling, balance, weakness, Lhermitte’s) over the last 6 weeks or so. As disheartening as these were, my main problem really were fatigue and the state of despair I was in. I wondered about two things:
1. Do any of you experience weeks and weeks of pretty much back to back tiredness that makes daily life almost impossible? My MS nurse said that rather than several weeks at the time most MSers experience extreme fatigue following exhaustion and/or at certain times of the day rather than my pattern above. Hence, I hope this may have been a case of ‘not coping’ with the still new-ish diagnosis and the first physical symptoms rather than the dreaded MS fatigue?
2. Relatedly, what are your experiences with mental health problems, particularly when you have relapse? My mood spiralled downhill very quickly but I put it down to the level of exhaustion I was experiencing. Coming out the other side of it, I am now wondering what is the hen and what is the egg – i.e. mental health dragged down by fatigue or fatigue a symptom/side effect of not coping?
Any pointers would be helpful 🙂