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stumbler
1 year ago

STH , @mmhhpp? I’m sure you don’t mean Somatotropic Hormone!

Or, do you mean HSTC (Hematopoietic stem cell transplantation)?


mmhhpp
1 year ago

I feel really tired like my battery has run out. No energy.i was wondering if there is sth I can do…


mmhhpp
1 year ago

So exhausted i wish closing my eyes and go for a very long sleep…


mmhhpp
1 year ago

It might be hypothyroidism i will ask gp to test it…


rubyroo
1 year ago

What is Sth? I am the same, awful fatigue and heavy legs. I see consultant on Tuesday too and think I may need to change my DMT.


simone2
1 year ago

i find if i eat every few hours my fatique isnt so bad but maybe everyone is different


stumbler
1 year ago

A-ha, I see. STH is actually an abbreviation for the word, “something”! πŸ˜•


stumbler
1 year ago

@simone2 ‘s comment about eating every few hours is logical. It takes energy to digest food.


mmhhpp
1 year ago

Yes @rubyroo and @stumbler
Sth = something
Too tyred to write long words 😏
Rubyroo my ms started in 2010 i have been on gilenya but 1/2 dose it did not stop progresson but it may have stopped relapses.

Fighting to get cladribine atm = at the moment 😏


stumbler
1 year ago

@mmhhpp , I don’t know, you youngsters and all your abbreviations! πŸ˜‰


noelie
1 year ago

@mmhhpp One thing that is working for me at the moment is time off. I got signed off work for 2 months and taking time to look after myself. Having as little responsibility as possible, and doing my physio exercises. Is it possible in your situation? xxx


salvador
1 year ago

Hi @mmhhpp
I’ve suffered from quite severe fatigue over the last several years, and it appears that there isn’t a wonder drug that makes any significant difference.

However, for the last month I’ve been following the OMS diet religiously (plant-based wholefood diet plus plenty of fish. No processed foods, red meat or dairy) and it has made the most dramatic improvement to my fatigue. It’s close to miraculous. I’m doing full length days without going to bed in the afternoon and my entire outlook on life has changed.

I would really recommend that you try the diet, but you need to be strict. Unfortunately, it doesn’t really help if you don’t have discipline (I know from painful experience πŸ˜€). Good luck!


mmhhpp
1 year ago

Maybe I should start considering the OMS diet although I don’t believe too much on it but I should try a bit, it is difficult when you have a husband and kids who eat meat and dairy …. and they are in charge of the cooking …….


mmhhpp
1 year ago

The message above is for @salvador


mmhhpp
1 year ago

@noeli, I have all the time in the world for resting and I haven’t seen a trend that I could follow ….


noelie
1 year ago

Then yes, look at the diet. Watch out for saturated fat and sugar and reduce them as much as possible, it really helps. good luck x


noelie
1 year ago

(i mean refined sugar, fruits and honey are fine)

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