Last reply 6 months ago
Exploring fatigue in MS research

Hi all,

We’ve been approached by a researcher at Kings College London who would like the community to help with research they are doing. Details below…

……………………………………………………………………………………………………………………………………..

We are inviting you to take part in some research exploring aspects of fatigue in people with long-term conditions. We are specifically focusing on Multiple Sclerosis (MS) and Cancer, as many people with these conditions report high levels of fatigue.

What will you be asked to do?
We want to check the suitability of the materials that we plan to use in our future research. These are a set of short descriptions about every-day situations. We will ask you to read these short descriptions and then answer some questions about them. Don’t worry, this is not a test of your memory test but rather how people remember certain types of information.

You will also be invited to complete some questions about your illness, symptoms and mood. You will also be asked to provide some basic demographic information (e.g., age, gender).

All of this information will be collected using an online survey and takes about 30-45 minutes to complete. You can take a short break half way through but please return to the questionnaire the same day.

Participation is fully confidential and your answers are anonymous.

Who can take part?
We are inviting anyone over the age of 18 years, with Multiple Sclerosis or Cancer to take part.

Who has reviewed the study?
An ethical review of this study has been carried out by London-Dulwich Research Ethics Committee.

Interested?
Click here – https://kcliop.eu.qualtrics.com/jfe/form/SV_7VTijuQhqOGRISF

If you would like to find out more about this study please contact the research team by email [email protected], or phone 0207 188 5422. Please note that enquiring about participation does not commit you in any way.

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tracyd
6 months ago

They have missed the most basic baseline question from the start of the survey

– what treatment are you on ……

makes it all completely moot to measure by ‘are you fatigued’ and ‘what disease do you have’ if they also don’t measure what treatment people have had and at what points in the condition

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