Last reply 1 month ago
Europe's Biggest MS research conference

And we’re going to it!

From Wednesday 10th to Friday 12th Oct, a team of Shift.ms MS Reporters will be at ECTRIMS (European Committee for Treatment and Research into Multiple Sclerosis) and interviewing a number of leading MS experts.

The team will be reporting back the latest on MS research developments so keep an eye on the stream as the vids are released.

Robby is an MS Reporter who attended ECTRIMS last year to report for the community. Check out what he has to say…

Huge thanks to the volunteers, Alex, Rachel, Aoife, Suk, Paul and Heather, who are coming with us to help make sure the community hear about the latest developments.

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viviendawson
1 month ago

@bobby well done because public speaking is very stressful and scary thank you


mermaidia11
1 month ago

@sarahshift
…..But nevertheless, lacking impartiality
.. because it is sponsored by drug companies

And again, no mention of efforts for a cure or have any control over the advent of the inevitable secondary progressive stage of the illness.

Will ECTRIMS be talking about this research?

If there is, then please do report on this. That would be a very helpful, hopeful piece of journalism from the shift team

If not, then please do consider the money spent sendin 6 reporters out to Europe- on something that really does help your shift community.

Maybe a benefits advisor or an ms nurse to help answer queries you members have – this would be of much more benefit to us

The lack of response on ur post speaks volumes


sarahshift
1 month ago

Thanks for taking the time to respond @mermaidia11

Have you checked out the programme for ECTRIMS? https://www.ectrims-congress.eu/2018/scientific-programme/scientific-programme.html

Whilst at ECTRIMS the volunteer MS Reporters will be interviewing experts about;

The MS-SMART trial
Recent developments in progressive MS
Medication for people planning a pregnancy
Access and restrictions to MS therapies across countries
Immune reconstitution therapy

These are just a few topics, the reporters will try and cover as much as possible without tiring themselves out – the sessions they will sit through before an interview are long! We’re very lucky the volunteer Reporters and Filming Buddies are donating their time, taking days off work, travelling, etc. to report back to the rest of the community about what they have found out.

The topics we will report on were chosen after speaking to members of the community about what they were interested in finding out about.

Separate to ECTRIMS, we have many MS Reporters interviews with MS Nurses covering a range of topics, see https://shift.ms/msreporters and search by job title. You’re welcome to submit questions for any expert.

We want to hear what the community want to know more about. The more vocal people are about what topics they want covered the better!

Thanks
Sarah


palolo
1 month ago

Hi @mermaidia11,

@sarahshift summarises well our goals at ECTRIMS. I can speak as an MSer and someone who acted as reporter at ECTRIMS 2016.

I cannot overstate the value of channelling the most recent research back to the MS community in an easy to grasp manner. While we are still some distance away from a cure for MS, massive progress is being made every year on drugs that reduce inflammation or aim at remyelination, therapies for managing fatigue, or just body of knowledge for understanding what triggers MS and why (environmental factors, gut microbiome, and so on). Unfortunately it takes a lot of time until the general public becomes aware of these developments, in part because unfortunately scientific papers are mostly behind pay walls. Moreover, even publications that have open access are difficult to digest without proper medical training. Therefore short one-to-one recorded discussions with experts behind MS research as this comes to light, in my opinion, bridge the gap between the research and patient communities.

I hope you will find something that is of interest to you from the interviews Shift will publish next week from ECTRIMS Berlin and if you have particular questions you feel we should ask, please drop a note.

Paul


longboat
1 month ago

/Users/rachelhorne/Desktop/IMG_1908.jpg

Getting ready for ECTRIMS and wondering which talks to attend over the three day period… a bit overwhelming.

Here’s a close-up of the first hour session on the first day… /Users/rachelhorne/Desktop/IMG_1909.jpg

 

**NOTE** It’s not possible to post images on the forum. 🙁 Admin (stumbler)

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