Hi, I’ve read through quite a few posts talking work but I think that asking my question and getting some advice will be best this way. I had Lemtrada infusion June 2017 & June 2018.
I worked for a company for 13 years. This was great as I worked from my computer at home so when I was diagnosed with MS I could still manage my job easily. (website development/management/admin) Unexpected in November 2017 I was made redundant.
I spent ages job hunting anything I could manage. I got job as midday supervisor at local primary school. I soon found children did not respect me and I was never up to date with changes and it was hard work for little ££ being only 1 hour a day so searched again.
I got new job last October as a fundraiser for a charity. It’s Wednesday-Saturday so 4 days a week. I travel to different venues each shift, carry then setup a table, posted and material then fundraise 7 hours. I can need to drive anything from 20 miles to 50 miles to venue then again to get home so it’s often another 2 – 3 hours on my fundraising time so I’m pushing myself.
It’s now caught me out & I’ve been off work since 17th January. GP doesn’t understand & is grumpy giving me sick note. I did call my neurology team & the MS nurse saw me. Blood tests Tec don’t show any problems so it’s just MS. She said may be my job isn’t the one for me so I may need to change.
There’s nothing else or easier options in the company so I’ve been searching jobs. I have applied for 6 other jobs but I’m getting a no thanks or no reply. GP told her receptionist the note she does for me today is the last then she’ll need to see me. I don’t know how long this note will cover yet but I do know seeing me won’t help her see fatigue & neurological pain.
Any work ideas please?
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