Nikki 06/01/15
Last reply 3 years ago
Does anyone have Asthma but take Gilenya

Having had MS now for 23 years and being told i really need to take DMDs, I reluctantly tried different ones. None of them suited me and gave me respiratory and skin problems. I have been offered Gilenya but i keep turning it down, like others I am nervous about trying it. Please can anyone tell me if you have asthma but are taking Gilenya and how you find it. I have been struggling to make a decision because of all the possible serious side effects.

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3 years ago

@Nikki , I have seen some MSers across “the pond” who have asthma and take Gilenya.

Any DMD has a risk, so you just need to work with your Neuro for the way forward. You will be closely monitored for any issues, which may make you change treatment course again.

Good luck.

3 years ago

Hi Nikki,
Zero side effects with gylinea, Ms slowed down . My biggest worry is losing my prescription for it due to insurance problems. If you are being offered it you are lucky – go for it!

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