Hi everyone! I have suspected on and off for the past five years or so that I have MS. At that time, in 2012, I had a brain MRI done, and it only showed this:
(That’s a link to a google doc with two images.)
The doctors didn’t think they saw anything, although I do, when I look at those images. Anyway, I’ve had Lhermittes sign for years, probably since I was in my early twenties. (I’m forty now.) The Lhermittes sign gets worse every time I’m sick with a cold, the flu, etc. Other times, it disappears entirely.
Fatigue has been an issue for pretty much my entire life, since I was around 16 or 17 years old. I need around 9-11 hours of sleep at night, and that’s with my alertness aid (Provigil). Before Provigil, I required 11-13 hours of sleep. It’s not that I can’t wake up–I’ll either fall back to sleep or be a crabapple all day. Trust me on that!
I have ataxia sometimes–my hands get weak and close themselves.
I have a long list of mental illnesses for which I take five medications per day (including the Provigil). And I suspect the doctors don’t take me seriously because I’m a cute little mental patient. But both the fatigue and the Lhermittes sign predate my taking these medicines.
I have always had weak joints, which I realized when I was thirteen years old. I’d been taking ballet for ten years, but I was never allowed to move up to the next level. Doing a grand plie (it’s like a squat) without holding the bar, and then coming back up, was very hard for me, even at that age of peak physical fitness.
What does everyone think?
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