Last reply 8 months ago
Diagnosis today

So today i went to the Queen Elizabeth hospital in birmingham to see the M.S. specialist who has now given me my diagnosis of M.S. He was brilliant and explained everything – set me up with an M.S. nurse and has offered me lemtrada for treatment if i want it. Im going to read up about it now so i can make my decision. Daft as it sounds getting this diagnosis is such a relief as now i know what im up against. I have new lesions on my neck and spine since my first mri scan last year. These were from a relapse i had in january this year but i have mostly recovered from this just left with some balance issues, bladder problems and terrible fatigue but nothing i cant cope with. Onwards and upwards lol

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8 months ago

Hi Iinzzi

I had similar story, diagnoisis was by lovely neurologist, who suggested Lemtrada, it was the best decision I made. Not saying it will be plain sailing but 5 days treatment, 1st year and 3 days 2nd year beats regular infusions or injections. It has worked for me and reassuring you get monthly blood/urine tests for total of 5 years the monitoring is very reassuring. As I said it has been a rollercoaster, I have changed my diet, taken up mindful meditation and reduced my working hours from full time to part time, fatigue can still be a challenge if I overdo it but I have been relapse free since 2015. Hope this helps.

8 months ago

Hi Linzi, sometimes getting a diagnosis is almost a relief, to have it confirmed that you’re not going nuts, that all these weird pains and twinges, the dropping things, the dragging leg etc., are all part of the beast called ms, great that he’s put you straight onto a DMT, hitting it hard and fast seems to be the way. Can’t help with the Lemtrada but good luck with whatever you go with. We’re always here for a natter or a question.😍 Jill

8 months ago

Hello @linzzzi, ’onwards and upwards’ has always been my personal motto too, and even more so since diagnosis. So this is the first day of a new life for you, not what you had planned I’m sure, but we’ve all been there and here we all are still. I hope you are feeling OK, be extra specially nice to yourself with lots of treats! Also, keep posting x

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