matie-k 16/05/18
Last reply 1 week ago
Diagnosis-primary progressive

I was diagnosed the other with primary progressive MS. I am 32 year old female and was wondering is having children an option anymore? It was one of my first questions as I really wanted children.

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


sherryak
1 week ago

I don’t have any kids, but what I’ve heard is that you get a break from MS during pregnancy. I’ve heard that women usually have a relapse as soon as they give birth so you have to be ready to start a medicine as soon as you give birth. I’ve also heard that breastfeeding is typically out of the picture because of having to go back to treatment right away.

But I don’t know any of this firsthand.


poppy12
1 week ago

There is no treatment for PPMS in many places but something is forthcoming. I think it’s called Ocrevus or similar. You would need to check and if you go on treatment, @sherryak is probably right re breast feeding and pregnancy.

If I was you, I would consider this:
– Have you got a partner and/or wider family/friends who will be there for you and your children if push comes to shove?
– How big would the financial impact be for your future family if you ended up unable to work?
– Is there a history of autoimmune disorders in your family (MS isn’t heritable but it seems a number of MSers come from families with autoimmune issues)? I.e. are you likely to pass on an autoimmune ‘gift’?
– Do you have any other health problems besides MS that make life harder?

Given that my answers to the above were no/massive/yes/yes I felt it was better to give babies a rain check. That said, having kids was never a priority anyway.

If I was you, I’d give myself a year or so to get to know your own journey with MS. And in parallel, if any of the above answers are dodgy you can see what you can do to improve them.

Overall, there is no reason not to have kids because of MS. But all of us with MS sit on a bit of a time bomb which may never go off terribly badly (!!) but I think it is important to have safeguards in case they are needed.

poppy


stumbler
1 week ago

Hi @matie-k and welcome to another Brighton resident.

Live and eat healthily and sensibly and never give up on your life’s aspirations. There is nothing to stop you following your maternal instincts.

I’m not sure the comments above regarding post-partum relapse activity are applicable to you, as you shouldn’t experience relapses with Primary Progressive MS (PPMS).

There’s a booklet about PPMS here :-

https://support.mstrust.org.uk/file/store-pdfs/Primary_Progressive_MS_2017.pdf

It’s also available to order in hard copy, at no charge, here :-

https://support.mstrust.org.uk/shop

you’ll find it under the “about MS” button. But, you may have a copy already…… 😉


yvonnemair
1 week ago

I’ve had ms for 24 years, 16 years ago I had my son, I was the opposite way around, while I was pregnant I was great till I was 4 months pregnant, then I had a relapse for the rest of my pregnancy and couldn’t do anything, I don’t know how I would have managed without my husband, mam, dad, sister and friends. Once I had my son, the relapse ended and I could do things again. (I’m glad I had my son, I wouldn’t change anything).


dramaqueen
1 week ago

I was diagnosed in 1990 with ppms. I had my son 1993 a single parent . Pregnancy was fine but tiring as with all women. Breast fed for around 4 months am secondary progressive now and have been for about 15 years. My son is 25 . To be honest being a mum was the best decision I ever made. I believe my responsibility made me forget about ms. My ms did deteriorate slowly but who knows that my ms would have taken this path. Go with your heart. Best of luck. x

Post Comment

You must be logged in to reply to this topic.