Last reply 3 weeks ago
diagnosis confusion?

Hello all, having recently been diagnosed with primary progressive MS, after an uphill fight of over a year to get a diagnosis, I wonder if anyone else on here has had a diagnosis blaming alcohol abuse for their MS. My latest clinic letter, after an MRI of my brain and spinal cord with dyes would seem to lay the blame there, saying my symptoms (spasticity & weakness in my legs) should hopefully improve if I maintain my current abstinence.
I know its potentially an embarrassing subject to air in public but, would welcome information
from anyone who has an insight from either experience or researched knowledge of PPMS.

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stumbler
4 weeks ago

@nobodyin , so alcohol abuse causes MS! If that was the case, there would be more than just over 100,000 people with MS in the UK!

Smoking is another “cause”. And, it could also be sexually transmitted, which may have fitted with me, as I was a bit of a tart in my formative years!

We’ve all got a past, which we can’t change, so just deal with the hear and now.

Here’s a booklet regarding Primary Progressive MS (PPMS), which you may have already :-

https://support.mstrust.org.uk/file/store-pdfs/Primary_Progressive_MS_2017.pdf


nobodyin
4 weeks ago

As indeed I am, though I would obviously like to know if the prognosis holds water. Annoyingly it has taken in reality nearly 2 years and finally letters to my MP and the CEO of my local hospital to get to see a neurologist and get a diagnosis, during which time my condition has got worse/deteriorated. To twist the knife further I got
a call for work @ Pinewood on the morning of my first appointment with the neurologist. Needless to say people on crutches, as I am now, wasn’t last September, aren’t much use for set building on film sound stages.


jcorvec
3 weeks ago

Hi there!! I do not post much here because my condition is poor and it is frustrating to read what some people say here – I will be doing better if I would just use mind-control, etc. All MS Societies do this and I refuse to listen any more. When I first saw a neurologist, he was very very interested in my past alcohol abuse being the cause of my trouble. I AM NOT STATING ALCOHOL CAUSES MS. However, for some people it may be a factor in their condition. I read posts from MSers from all over the world who write they are or were heavy drinkers. Just saying. Nothing we can do now though….Take care!!!


nobodyin
3 weeks ago

Thanks for the replies, having moved back to Leeds (by necessity, not choice, no disrespect to the place) will be seeing the Leeds MS team next week hopefully getting a second opinion from their neurologist(‘s). Sobriety seems to suit me I at present, certainly easier on my wallet, distance from my previous life in London has also allowed reflection on the damage alcohol caused to my relationship with my ex partner and young son. Outside of London the health service seems to be less stressed and neurophysio (only talked of but, never seen in the capital) is now on the cards
`vb

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