Last reply 6 years ago
Diagnoses????

Hello, hello,

Just curious if anyone knows of an exclusive test to diagnose for MS?? Besides an MIR

Thanks

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sian810
6 years ago

Hiya, a lumber puncture can also diagnose MS other than an MRI as cerebral spinal fluid it shows up cells in there that are abnormal to normal readings 🙂


aardvark
6 years ago

Hi @lindz

I’m pretty sure that @sian810 is spot on. An MRI is useful in the diagnosis of MS, but a lumber puncture is the only sure fire way to ID the abnormal cells.

For MRIs to really come into their own, you need to have a number of them over a period of time. Because the Neuros can compare the latest one with the last one, they can track the progression of the disease.

When I saw my Neuro and he confirmed my diagnosis, he was unable to get my first MRI up on screen properly as there was a computer problem! However, he pretty much said the above.


sian810
6 years ago

Thanks @aardvark, it is funny as my neuro only ever looked at my history told me what it might be and confirmed this after 1 MRI. I know this to be true for lumbar punctures tho as i have had to assist in many as i am a nurse too, (how lucky am i) we make the worst patients and i do as too much knowledge sometimes can be a bad thing lol 🙂


aardvark
6 years ago

Hi nurse @sian810 🙂

I’m sure you’re right here too. Certainly my neuro talked about the “significant scarring” he had seen previously (before the computer broke down) on my MRI, both in my spinal cord and my brain.

I think that my symptoms over the past 15ish years, combined with the scarring he saw in the MRI were enough to confirm my diagnosis. So I have escaped the joys of the lumber puncture so far!


madmaz1
6 years ago

@aardvark i hope i manage to avoid it too , im really not looking forward to being told i need a lumber puncture :s


Anonymous
6 years ago

MRIs are treated as the end all be all of dx for MS where I am at…typically because it is a small percentage of MS patients that have clean MRIs in the beginning of the disease. LP is the only way to bypass the possible ‘false negative’ of MRIs but because they don’t do LPs to check to see if the MRI is correct or not…they tend to just do a process of elimination. Make sure its not anything that looks like MS, do an MRI, then on rare occasions the LP and such.


ophelia
6 years ago

Same in my trust Chels, I had a head scan then a spine scan about a week later. At diagnosis the consultant told me there was no need for me to have an LP as there was significant scarring on scan, both old and new active lesions.


namansareen88
6 years ago

I never had a lumbar puncture thankfully, it sounds very unsavoury!! Just had an MRI and that confirmed it for them…had all kinds of lesions in there. I cried the day the neurologist told me! Felt like the end of the world as we know it!!


Anonymous
6 years ago

Is it strange that I’m hoping for an LP?

Hiya,

I thought Sian was correct, the LP confirms the MRI and it shows up the oligoclonal bands that aren’t present in other conditions.

Chels…..yes it it strange that you’re hoping for an LP!! Having said that alot of people sail through them……mine wasn’t an experience i want to have again!!


Anonymous
6 years ago

LoL Hoping for one so that I can finally get a dx. My MRI and blood tests were normal. But all of my symptoms and history point towards MS. Just want to either be diagnosed or to rule out MS once and for all and move on to another possibility.


aoife
6 years ago

Wow reading all of that is so strange, when I found out, I hadn’t had an MRI or lumbar puncture, I was unofficially diagnosed, then after my MRI in the following days I was diagnosed, and for an official diagnosis to start me on meds I had to have a lumbar puncture although I already knew. I didn’t want one but because it was necessary for the official diagnosis I had to.

On a side note, there are people who have no lesions on MRI and have MS! There are also people who’s lumbar puncture is negative for oligoclonal bands which are the proteins in the cerebrospinal fluid that provides the positive MS result in the lumbar puncture!

Also a LP is not as bad as people make it out to be in my experience! I was terrified because of the stories I had heard, that fear was the worst part. The procedure itself was uncomfortable, but not at all painful. I did have a bad headache the following day but I think this is because I live quite a distance from the hospital and travelled home sitting up after.


Anonymous
6 years ago

*like post* @ Aoife (they do need a like button here)


lindz
6 years ago

Thanks all for the input!!

Chels have you considered getting tested for Lyme disease?? I have known of people who were misdiagnosed because of very similar symptoms! To date I have been diagnosed with both, so you can imagine my dismay about which is the right diagnosis. God for bid I have both! 🙁


Anonymous
6 years ago

I have been tested for Lyme. It was done when I had my blood tests done. It was negative. I have heard that sometimes those tests done in normal labs can sometimes be wrong and that it is best to go to a specialist for it….but I’m not sure how accurate that account is. On any account I’m sure its a test that will be redone at some point…if I can ever get back into a doctor.


lindz
6 years ago

Yes, I have heard that test can come back negative! In Canada we do not have proper testing! 🙁 Where abouts are you from?


Anonymous
6 years ago

I’m in the Northwest USA. And its just a sad fact that any test can be a false positive/negative…its just a matter of how common it is…and that I do not know. Its on my list of ‘Ask and follow up on’ questions.


Anonymous
6 years ago

I actually was just looking up information on testing for Lyme. Apparently false results are fairly common everywhere and it typically a two step process done in the lab. I’ll probably request to have it done again…and request the tests by name (ELISA test, IFA test, PCR test, and a skin culture.) to make sure its done correctly. Only way to know for sure.
It would be impressive if it were Lyme. I am very rarely in a situation to be bitten by a tick (and even less so when symptoms started) and I am missing two of the main symptoms. But it is always possible and definitely something that needs to be looked into…again.


DjBlack
6 years ago

I had three MRIs over 8 month period and a lumbar puncture (LP) at the same time as the last MRI. Got diagnosis from the confirmation of extra oglicolonal band? (extra protein marker in CSF) in LP results along with the progression of some more lesions in ye ol’ brain and then some in my spine C3-5 I think. Haven’t had many problems since then but guess it’s always there ready to bite me in the ar$e haha

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