Looking for some reassurance if thats possible! I was diagnosed just recently with MS by a neuro who referred me to an MS consaultant. Really nice chap but said that its difficult to get a clinically definitive diagnosis at this stage? Confused me a little so i asked was there a chance this is not MS – he asnswered ‘No its definately MS but untill your next episode or positive test (im having an eye/brain response test soon) we cant formally say what type it is’. So my husnamd asked if it classes as a CIS, and the Dr said not quite as i have had previous symptoms but the 2 areas of inflamtion on my spine may have happened at the same time and so look like only 1 attack. (CFS was positive for O bands) He then sent me to meet the MS nurse who was lovely and gave me lots of info and treated me as though I have MS but Dr said he couldnt provide me with written confirmation as its not clinically definitive. So now i feel very confused as to whether or not I have MS. they say yes to me but it feels like they dont want to commit in writing? My GP is under the impression that i have it since my neuro wrote to him and included the words ‘discussed the diaognosis of MS’ – although my insurance company feels that wording is ambiguous and not a diagnosis in itself.
What do you guys think? Am i in denial?
Sorry for rambling post!
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