I recently got diagnosed with RRMS and am going to start Lemtrada soon. I am young and at the moment my MS has put all of my ‘constants’ up in the air. My study (I’m a student), career options, where I will be living and the start date of my treatment all keep changing and so there is no certainty of what the immediate future looks like, let alone beginning to process what the future looks like in light of this diagnosis.
Does anyone therefore have any tips or first hand experiences of how they coped with all the uncertainty and the loss of control of decision being made for you? The anxiety is real and I feel like I’m a hamster on a hamster wheel using the little energy that I do have, to chase people regarding sorting out all the admin that comes with the above uncertainties. When actually, I need to process the diagnosis and focus on getting the treatment that I need.
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