Last reply 3 weeks ago
Confused and need advice

I was diagnosed with multiple sclerosis July 17th of 2018.
My neurologist had put me on 1 mg of Klonopin 3 times a day he put me on 600 mg of Tegretol 200 mg 3 times a day and Copaxone already loaded syringes 40 mg.
He put me on the Tegretol because my electrocardiogram came back that my brain spikes were too close together.
I went back to see him and Copaxone was giving me very very very bad anxiety and he hopped my Klonopin to 2 mg 3 times a day.
So I stopped taking my Copaxone on my own because of the anxiety and I just kept taking the Klonopin as prescribed and the Tegretol as prescribed and I have an alcohol problem so I was drinking while taking these medications and I’m not taking my Copaxone shot so now I’m taking more Klonopin than prescribed sometimes 8 mg a day sometimes 9 trying to get off of the alcohol.
Not much more to say other than I’m just confused and I don’t know which way to turn I can get myself off of the alcohol not a problem however getting back down to 2 mg of Klonopin is going to be rough I don’t know if there’s a medication out there for relapse remitting Ms that does not cause so much anxiety I don’t know if I could live without being on some type of benzo because my nerves hurt.
I have heard of people taking CBD oil and I have tried it and it is amazing I’m starting to wonder if I would be better off on a muscle relaxer rather than such a high dose of Klonopin and the only reason he put me on such a high dose was because of the anxiety from the compact Zone however the 2 mg of Klonopin does not even take care of the anxiety from the Copaxone so I’m in a little bit of a catch-22 I also take Zoloft for depression and I take pravastatin for high cholesterol
My question is I get two or three days without alcohol and I start getting these fits alcoholic fits I think what I should do is just stop alcohol together and then talk to my doctor about a Klonopin taper and see where it goes from there I don’t know if I could live without being on some kind of benzo because my nerves hurt that bad.
This is my first post so I would appreciate any positive feedback thank you in advance Warriors I love you guys God bless

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dramaqueen
3 weeks ago

Bit confused as don’t take meds as nothing available for progressive MS. But sense tells me take one new drug at a time to try and understand how it effects you. Its very encouraging that CBD helps. Just wanted to reply to your post and hope another member can help. x


mlgilber1
3 weeks ago

I’m so sorry you’re going through all of this. Are you sure the anxiety was caused by the capoxone because MS can cause anxiety as well. I’ve had severe anxiety all my life plus daily panic attacks so I was put on a daily dose of Xanax which over time turned into a big dose of taking 9mg a day and sometimes probably more. Benzos aren’t meant to be taken everyday because the body becomes tolerant really fast so you keep needing a higher dosage for the same effect which my doctor had never told me. I tried the taper so many times and couldn’t do it and was told by my doctor withdrawal can cause seizures and in some cases be lethal if you don’t do it the right way. That gave me more anxiety of course. After ten years of being on it I decided to go to a detox to get off of it safely and it wasn’t nearly as bad doing it in a hospital. But then shortly before being diagnosed my anxiety increased so much. I get physically sick when I get too anxious. One day it magically all went away and I honestly think it’s because of the lesions in my brain. But staying off of it wasn’t a problem and I only take a benzo now if there’s something that does make me really nervous like an MRI. I’ve never had a problem with alcohol, but I did with pain killers because starting at a young age I’d get kidney stones so I went to an out patient for people with alcohol or opiate addiction. There are some medications for alcohol withdrawal. Naltrexone I believe is one of them and some people with MS take a low dose of it to help with symptoms and inflammation. I’d definitely talk to your doctor about everything. There’s lots of DMTs now, tons of meds that can be used for anxiety, and medication to help with alcohol withdrawal. I honestly never thought I could not take a benzo because of how much anxiety I had, but it’s possible. I’d get so nervous just being at home during the day watching a movie. I’d have no idea what would cause my anxiety to randomly flair. For once I haven’t had a panic attack in months when before I’d have several a day. Benzos over time usually end up causing more anxiety. This was just my personal experience with addiction and with benzos. Also, even if you were only taking it as prescribed your body would still become addicted over time since it’s taken every day. Please let me know if you have any questions. I’ve been off of for almost two years now. Best of luck.


milton_mount_jr_
3 weeks ago

@mlgilber1 thank you for the response I appreciate that today I am going to see my primary doctor and talk to her about the medication she gave me.
She put me on an alcohol medication which is similar to the shot and it didn’t work because I’m on Klonopin and Klonopin and alcohol work on the same receptors in your brain so this medication to get me off alcohol did not work I went to a detox last night they said they would not take me because they didn’t want to invoke on my doctor’s prescription I could have but like I said I don’t know what it would be like to be off of that my heart palpitate so sweaty and dizzy and the anxiety is horrible and just talk to her basically about what’s going on in my life I really do not want to tell my neurologist about my alcohol problem because I can stop drinking I can go for days without drinking and that’s about the time that you would need to get out of a detox my problem is I just keep on going up on the Klonopin and up on the Klonopin so I’m going to go to my primary care physician today and see what I can work out and then when I go see my neurologist I’m going to tell him that I need to be weaned off of these Klonopins to get back down to a normal dose or maybe on a different type of benzo would be sufficient


milton_mount_jr_
3 weeks ago

And mind you I have had mental health problems since I was 21 years old and I believe I did have MS at 21 before I was diagnosed at 33 and anxiety has been a large part of my life and it becomes physical very very quick and I’ve been on every every other well let’s just say I’ve been on about 10 medications for anxiety that are non-narcotic and they don’t work because my body is very sensitive to medications example I have allergies and I cannot take anything over the counter I have to take Flonase so if you can kind of understand what I’m saying


mlgilber1
3 weeks ago

I had severe anxiety starting as a child before MS. The MS increased my anxiety though. I’ve also tried pretty much every non benzo anxiety med and also had mental health problems. Nothing worked for the anxiety except for a benzo. The detox I went to kept people detoxing from alcohol longer than the others. I was upset when they wanted to send me home after 4 days so I just asked to stay a bit longer. I would get the racing heart and palpitations too. I’ve been to the emergency room quite a few times for it and chest pains. An at home taper can be done. For out patient I needed to be off pain killers for at least 24 hours which was near impossible for me so they gave me clonodine. It worked so well. It’s a sedative and can be used to help people get off of certain meds as well. It also took away my anxiety. An at home taper can work just be careful. I’ve been on all the benzos and Valium is a longer acting one so it doesn’t wear off so fast, it can also be used to help get off alcohol, and it’s prescribed to some people for nerve pain. I know how much anxiety sucks so I feel for you. I hope your anxiety settles soon. I seriously don’t know what calmed mine down after 20 years, but I’m so grateful. I remember when I first noticed it not being so bad I kept saying to myself “This must be what a normal person feels like.” Lol


milton_mount_jr_
3 weeks ago

Well I just got back from my primary care physicians office and she suggested that I continue with my regular 2mg of Klonopin.
That’s going to be hard considering the ups and downs I was going through with Klonopin she also said to take my Depakote three times a day instead of one and continue with my Zoloft
Now is a primary care physician allowed to adjust your medication from your psychiatrist just asking


mlgilber1
3 weeks ago

I believe they are, but one or the other will continue your care with those meds. I would maybe notify your psychiatrist of the change just to make sure.


milton_mount_jr_
3 weeks ago

Does psychiatrist play psycho 2 I’ve only seen my site maybe twice whole six months I’ve been going there that place is crazy


mlgilber1
3 weeks ago

Psychiatrists usually just handle the meds and do check in appointments so you’re supposed to see a psychologist as well, but it is hard these days. The place that I was sent to after detox is a joke. It’s all people that are court mandated to be there and all they have are counselors who see you once a month if that for 30 minutes! I don’t know how that’s supposed to help anyone in need. I used to see a psychiatrist, but no psychologist so I don’t think it’s mandatory unless your psychiatrist says they want you to see someone else for counseling.


milton_mount_jr_
3 weeks ago

Thanx

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