I’ve recently been diagnosed with RRMS whilst living in Australia (i’m originally from Staffordshire and over here working on a 457 visa) and was wondering if anyone else had received ‘conflicting’ messages from their healthcare professionals.
I was only diagnosed last week and so far i’ve had varying messages from different specialists on how MS is going to affect my life in general.Here’s a brief run down:
It’s manageable now, bit like having an allergy (eye specialist)
Wait and see how we go (neuro)
Bugger! (Nurse giving me my steroid IV)
Now i’m aware that nobody is able to give me a clear prognosis as MS is unpredictable but every single person i’ve spoken to has ranged from overly optimistic to pretty much writing me off full stop!
I can’t say that this is helping me digest the news any better, on any given day i can veer from ‘ok, so I have MS’ to ‘OMG! I’ll be in a wheelchair in 5 years!’
Has anyone else experienced this? I really don’t know who i should be listening to right now.
So glad I found Shift, everyone seems so well grounded and pretty optimistic!
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