Last reply 3 weeks ago
Confirmed diagnosis

Hi guys,
I posted a while ago regarding investigations but 3 weeks ago I had my results and received a diagnosis of multiple sclerosis, albeit with only one clinical possible, not definite, episode of symptoms.
I have around 5 lesions in my brain that apparently all look quite old, and all are in non-sensitive areas of my brain (hence why I have no symptoms!)
Everything is looking really positive and I’ve decided to try Rebif and see if it helps. I have been extremely lucky and I hope my future is still as bright as I want it to be!!

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scarletclarke
3 weeks ago

My ms nurse described it in a really nice way for me;
“Think of it like diabetes. You will always have it, and it will never go away, but take your medications, look after yourself and you will be absolutely fine.”


stumbler
3 weeks ago

@scarletclarke , I’m sorry that you got this diagnosis, but, “forearmed is forewarned”. You now know what you’re dealing with.

Your future is still in your hands. This is just one of the curve balls that life can throw at us.

Take care, live healthily, eat healthily and avoid stress. 😉


rivka
3 weeks ago

I’m on rebif. Apparently there are many stronger,newer meds out there but I’m tolerating this one, side effects are minimal, and no new lesions so far…
Stay positive and stay on the path of your bright future!


scarletclarke
3 weeks ago

@stumblr as a nurse, no stress is impossible 😂

@rivka Rebif is my only option as I’ve not got enough symptoms to qualify for any others. However I’ve heard it’s not got many side effects so if it helps, Why not!


rivka
3 weeks ago

Yeah for not having enough symptoms for stronger med? 🤔
My advice for rebif (which you didn’t ask for) is ibuprofen 20 minutes before the injection and drink a lot of water daily.


stumbler
3 weeks ago

@scarletclarke , my wife is a nurse, so I understand what you angels have to tolerate.

Life, generally, can present us with all manners of stressful situations. It’s how we manage those situations which is important. Should you allow them to impact you, if it will be a direct threat to your health?

Thank you for what you do. 😉


vixen
3 weeks ago

Hello @scarletclarke, welcome to this very exclusive club. Glad you are finding your way so well. Positivity is truly the key, combined with @stumbler’s advice about living healthily and avoiding stress. Hope your DMD journey goes well x

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