jemmaloujo 16/04/18
Last reply 1 week ago
Cladribine availability

Hey guys,

I’ve been taking tecfidera for over two years and after a bad relapse have now been offered cladribine, lemtrada or fingolimod.

I have chosen cladribine but have now found out that it isn’t actually available in my area yet and no idea of when it will be.

Just wondered if anyone else is waiting for cladribine to be available in their area?

Thanks
Jemma

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mmhhpp
1 week ago

I would get an appointment with a hospital that prescribes it in uk.
Talk to your gp for a referal @jemmaloujo


stumbler
1 week ago

@jemmaloujo , you shouldn’t have been offered something which wasn’t available. That’s not professional.

The problem is that Cladribine isn’t approved for use with MS…….yet. It is being used “off-label” at other locations, e.g. London. Your neuro should be able to get you referred up to London, although this may take some time.


sciencegeek
1 week ago

Mavenclad (oral Cladribine) is available in England and Wales if you meet the NICE criteria. Perhaps your hospital just doesn’t have a prescribing policy yet. You should clarify what they meant by “not available”.

I know that King’s College Hospital and The Royal London are prescribing the oral form already.

I’m currently having the injections at the Royal London, which is off label.

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