Been reading the forums for a while and getting lots of helpful info. Here is my story:
I saw the neurologist on Tuesday for a follow up after having MRI in August, repeat MRI in November, EPs and LP. Symptoms were sensory started last summer and mainly resolved except odd sensations in both arms overnight in bed. I also had another episode of altered sensation in my feet in 1999 which was attributed to a partially slipped disc following a lumbar spine MRI.
Both MRIs are the same with some 2-3 possible lesions, EPs were normal and LP oligoclonal bands in csf not in serum. She’s decided to diagnosis me as CIS at present though think she’d have diagnosed MS if more evidence around 1999 episode.
Plan now is MS nurse to talk about whether to start treatment. Although I was half expecting to be diagnosed I’m still feeling a bit shellshocked to be honest and not sure where to start.
The neurologist is leaving it up to me about starting DMDs. She said being diagnosed with CIS makes me eligible but the decision was mine. Think she said current recommendations were to start but can’t really remember. I’ll do some reading and see what the MS nurse says when I see her.
A few question sif anyone can help me please:
Does anyone have any recommendations of which DMD to start?
How do you actually get the drugs? Will the MS nurse give me a prescription? Will it be for a month’s supply or 6 months? Will I need monitoring? Will that be at the GPs?
Do I need to tell dvla?
Sorry for all of the questions.
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