Last reply 1 month ago
Breathing difficulties

I’ve been diagnosed with MS in 2000. Since then I have had difficulty in breathing with the simplest tasks. I have done a lung capacity test and a stress test. My GP (not neurologist) has diagnosed me with COPD and prescribed two different inhalers. They don’t help me with breathing at all.

I have been reading about others with MS having difficulty with breathing due to MS. I asked my GP if my breathing could be as a result of MS and he is adamant it is COPD.

Does anyone else have this same issue? If so what do you do about it?

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stumbler
1 month ago

@jamitchell , there is an MS symptom known as the “MS Hug”, or Banding.

This where the intercostal muscles, around your rib cage, go into spasm. This like having a very tight girdle, squeezing you and inhibiting your ability to fill your lungs when you breath.

There’s more details here :-

https://www.mstrust.org.uk/a-z/ms-hug

Hope this helps


cosine
1 month ago

Hi,
See your neurologist. It is not as commonly known but yes they can be caused by MS. I emailed the MS Society helpline with the same problem and they said they are going to update their page next year about breathing issues and sent me two links in the mean time.

https://www.mstrust.org.uk/a-z/breathing-problems

https://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Respiration-Breathing-Problems


cosine
1 month ago

My GP understood that when my inhaler didn’t work it was caused by something else. Gabapentin helped my breathing significantly. Are you on any other medication?


jamitchell
1 month ago

I am on Gabapentin but not for breathing. My breathing is fine if I’m sitting but with simple tasks like making my bed or carrying in groceries I start breathing heaving as I run out of oxygen.


cosine
1 month ago

Has the GP not offered alternative medication that would help more?


jamitchell
1 month ago

He did offer a different inhaler but I haven’t tried it yet. I went off my inhalers for a few weeks and didn’t notice a change. My GP told I need to stay on them though. I just got a new prescription for this new inhaler. But it caused me to wonder if it was MS related.


nutshell88
1 month ago

I Tried to look for solution according to this site its a common problem with MS

https://multiplesclerosis.net/living-with-ms/ms-and-asthma/

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