Last reply 4 years ago
Botox: Bladder

Having had – and still experiencing – bladder issues associated with my MS; urgency, leaks etc, my neurologist refered me to a urologist, who has recommended bladder muscle Botox. Its aim is to relax the bladder muscle. He reckons this will transform my situation.
Any fellow MSers any experience of this?

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4 years ago

@eddie-d , been there, done that! 😉

Yes, I had all those problems that you have mentioned. It was starting to restrict and dictate my life. I was already on medications and Intermittent self-catheterising (ISC). Then I was offered Botox.

I had the procedure on 1st August last year. At my 6 week review, three months later, I was asked whether I was 90% happy with the outcome. I actually suggested my satisfaction went higher than that! It gave me my life back.

So, I can speak highly off the outcome, although a year down the line, I feel that I may need it done again. It does wear off unfortunately.

The other thing that needs to be considered is that emptying your bladder would require the use of a catheter. If you’re already on ISC, that shouldn’t be a problem as you’re used to it.

Any other questions? I’m happy to answer to make your decision easier.

4 years ago

Hi @stumbler
That’s great to hear!
Yes, to prevent UTI (from retention) they suggest that I self-catheterise 3 or 4 times a day – I’ve not done this before…
The Botox will be every six months.
Fingers crossed – as opposed to legs 😉
Thanks for your response!

4 years ago

Eddie-D , self catheterisation is something that you’ll quickly get used to. The benefits far outweigh minor changes in routine.

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