Last reply 4 months ago
Blood pressure

Have had rather a scrappy year?
The Tysabri seems generally ok, but I still get headaches and dizziness? They thought it was because I have been having low B12, So getting jabbed for that, but now it seems I have low blood pressure issues, 80 to 99 over 55 to 64??? They suspect postural hypertension?
But really don’t know? All my blood tests are ok, so they suspect Heart?
Apart from two drugs that I have read about I don’t know what can be done or why?

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merfield
4 months ago

@kea21, could vitamin D help? I read there were more cases of MS in NZ than in Australia – owing to distance from the Equator – and more cases in South Island than the North Island….just a thought. xx


stumbler
4 months ago

@kea21 , these headaches and dizziness, is it a post-infusion problem or do you suffer generally with this?

Postural Hypertension is an increase in blood pressure when standing up from a seated position. Not to be confused with Hypotension, which is a decrease in pressure when standing up. Hyper is likely to cause a headache, whereas Hypo is like to cause dizziness.

Blood pressure needs to be taken when seated, then again when standing and the variance calculated.

The following article may help explain the situation:-

https://www.nhsinform.scot/illnesses-and-conditions/heart-and-blood-vessels/conditions/low-blood-pressure-hypotension

PS I’m not medical, so please continue talking to your Doctors.


kea21
4 months ago

Hi, I have always generally had morning headaches, but they go after moving around, but now when I first wake my BP is 100/115 over 65+, But as soon as I do something for a few minutes I get light headed,dizzy and my legs are pretty useless, then My BP is 85/95 over 55/65 ?
Yesterday after struggling around A two klm circuit with my Beagle my BP was down to 78 over 51! And I was really wobbly, Should be elevated after exercise, but I going the other way?
My MS Nurse believes it won’t be the Tysabri and suspects Heart?


stumbler
4 months ago

@kea21 , this last page of the article above should be of interest to you and your Hypotension :-

https://www.nhsinform.scot/illnesses-and-conditions/heart-and-blood-vessels/conditions/low-blood-pressure-hypotension#treating-low-blood-pressure

But, your Doctor should really be driving this forward.

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