I can’t figure out how to search on this website so my apologies if this has been discussed ad nauseam already.
I’ve got that “have to pee” feeling constantly. I have seen the urologist at least 4 times now, had every test under the sun (some rather unpleasant & embarrassing). He says there is nothing really wrong, my bladder is just sensitive and is probably MS related (neuro says definitely MS related). I’ve been on 3 different bladder medications. This last one is mybetriq (spelling that wrong, I’m sure). I was on 25 mg. Didn’t help. Moved me to 50 mg. Doesn’t really help & now has the added problem that when I do pee, it takes FOREVER. During the day I can cope fine. It’s when I lie down at night that I have to get up every 5 minutes. On a good night, I get up 3 times before I fall asleep. On a bad night, it can be 10-15 times in an hour – thankfully this is pretty rare. It is not a UTI, it is not a voiding issue. I’ve tried hypnotherapy too, to “trick” my brain into telling my bladder to relax when I lie down at night. Granted, it’s been only 1 week with that but that isn’t doing anything either.
He said the next course of action is botox. My question is, if 3 medications did not help, what good will the botox do? Clearly this 3rd medication IS helping my bladder relax, given how difficult it can be at times to pee, but it is not helping the issue when I lie down at night. So an unpleasant procedure to relax my bladder doesn’t seem like it would work. But…. ??? Thoughts, from other MS folks?
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