Last reply 2 months ago
Baclofen on a PAYG Basis

I have previously been on Baclofen, taking it the recommended 3 times a day.
It proved to be problematic, with some unwanted side effects. Side effects I couldn’t live with.

Wind on a few years and I at the point I really do need something for the spasticity and it is affecting my sleep and making the fatigue much worse.

I have spoken with my MS nurse and she has suggested taking Baclofen on an as needed basis rather then religiously taking it 3 times a day.

Has any one else tired this and has it worked?
Has it helped get round the side effects problem?

I must admit I am a bit sceptical, but prepared to give it a go, nothing to lose by it.

Paul

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mlgilber1
2 months ago

I take it as needed and it helps me that way, but I never experienced any side effects from it to begin with. I did see a doctor about a baclofen pump and they told me those are good because people usually experience less side effects from it that way since it’s going directly to your spine.


paulx
2 months ago

Hi @mlgilber1
You probably wouldn’t have had the same side effects anyway.
So far I have seen some benefit from taking on an as needed basis and they hasn’t been any problems.
So perhaps it is the way to go.

It is always difficult to tell since MS is far from and exact science. I am encouraged at least.

Paul


peterfrancis
2 months ago

@paulx

I’ve been taking 2 Baclofen a day since dianosis 18 months or so ago.
It has helped to ease the Spasticity a little, still occurs but not as often, the only side effect I’ve experienced is Sjodrens sign, really dry mouth.

Not aware of taking Baclofen as and when needed, I’ll be sure to mention it when I see my Nurse next.

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