During the past year (the year after my diagnosis), I have been reading a lot of research papers on MS.
One important thing I noticed being mentioned in many papers is that in many trials and researches they take it one step further than just counting lesions on MRI in order to routinely monitor MS:
They measure neurofilament light chain levels (NfL), which are a marker of inflammation going on in the CNS, as well as brain volume loss.
To me, these two sound as very valuable biomarkers, however every time I ask at the hospital I am being told that ‘these are only implemented in research and not in the clinical practice’.
My question to you is: are you being monitored for these two markers?
If yes, could you please give me some more details on where/how?
Thank you beforehand